Honestly it sucks, I can’t lie, and what you need to do depends a lot on what you need right now. A lot of it is phone work which is borderline impossible for me. If you have family or friends to help call it can be useful, but I find they sometimes lack the context. I try to do email when I can, otherwise push through it. The tldr is figure out what you need. Is it support at work? School? Something else? Then just force the issue. Find the “proper” process for something and try that first. It probably won’t work. So you call and call and email and escalate until it does. You might have to find alternative paths, talk to different people, etc. Self-advocacy is just that; standing up for yourself because you know it’s right and it’s what you need. It can be hellishly tiring especially if you’re in an environment where people actively do not want to help you. Some of the hardest fights I’ve had were in special education departments in school: the exact people who are supposed to want to help. Learn the system and shove it down their throats.