commentr/StutterJanuary 27, 2018

Content

You can always start with a signing of “me too” or start off with your disclosure. Reverse it- if you met a fellow PWS and you thought they were making fun of you I’m sure you’d figure it out in a few seconds. We communicate with body language, demeanor. I love the NSA but I still feel very ambivalent about being a member. I love it, I’m glad it exists, but I hate it too. I would have never chosen it, Stuttering occupies a LOT of my life (I’m not a PWS, my son is). I wish there was a cure, I wish I could do more to help my son. So much of it is creating space for him to deal with all of his feelings. I can’t shield him from any of the pain. I just have to sit in the sidelines, hold his hand and let him know that we walk this path together for as long as he wants me at his side. Stuttering just sucks in a way most people just don’t need to understand. It’s exhausting to work so hard at creating a supportive community and creating allies. Not sure where that vent came from but I’m too lazy to delete it.

Themes

Parent & CaregiverEmotional ExperienceSchool & WorkCommunity & Support

Subthemes

Parent Emotions & GuiltHope & MotivationAccess & RightsValidation & Empathy